Showing posts with label Diabetes. Show all posts
Showing posts with label Diabetes. Show all posts

11.9.16

Raging Storms

Storms raged all around me, not in the natural of course but the storms of life. The next season is a bit blurry as it was almost too painful to bear. First it was my second eldest daughter who left home. For the sake of her privacy and to protect all involved I can't tell you too much about it but let's just say that family life got really nasty for us all and it resulted in Jordan leaving home at only seventeen years old. Oh how I wish I could tell you the details so you could understand how much my heart was ripped out, how my marriage was hanging together by a thread and how losing Jordan not only hurt but confirmed my complete failure as a parent to her. Just believe me that it was nasty, unnecessary and very painful and left me broken in a way that I have never experienced before. I was even faced with a choice on one occasion where I was made to choose between my daughter and my husband! What would you do in that situation - it was not nice and I refused to choose either.

It may have been weeks, possibly months but certainly not very long after Jordan left that the next storm hit and if losing a daughter wasn't enough I had to face almost losing a son. We noticed that something was wrong with our son, Daniel who was 7 years old. He seemed fit and well and nothing seemed out of the ordinary except that he was drinking unusual amounts of water. It got so bad that he had to get up during the night several times to have a drink and of course go to the toilet. So after about a week of this I decided it best to go see a doctor even though it seemed like a silly symptom to go to the doctor for.

Everything from the doctor's appointment is a bit of a surreal haze and even two years and nine months on, I can remember the shock as if it were yesterday. The doctor did a urine test and afterwards looked gravely concerned and called the hospital.  Daniel was sent over as soon as possible and we were told to be prepared for him to stay overnight. He didn’t say what was wrong. Upon arriving at the hospital Daniel was seen immediately and had blood tests. I don’t recall exactly what happened or the order of events, all I remember is that his blood sugar was 33  (normal is between 4 – 7). They said they were surprised that he looked as well as he did and was not in a coma. He was that ill!

Daniel was admitted to hospital and we spend the next week at his bedside learning about type 1 diabetes, watching him crying as he had his finger pricked and blood taken often during the day and night. It was heart wrenching. Eric and I were in shock. After a week of excellent education by the NHS diabetic team, we were expected to start caring for him. They assured us that he would not be allowed home until they felt confident that we were able to manage his blood tests and insulin injections. We had to learn how to count carbohydrates, check his blood sugar levels and give him 4 to 6 injections a day. The severity of the situation was heavily impressed upon us and we were reminded that if his blood sugars went too high or too low he could die. It seemed every 5 minutes we were reminded that it was a life threatening lifelong disease that could not be cured ever.

Eric and I were exhausted from being in hospital, little sleep coupled with a lot of worry and uncertainty. We reached a point where we just wanted our family back home all together so we could get some sense of normality back into our life. Although it was clear life would never be the same again we craved some sort of routine. Each day we were asked if we were ready to give Daniel his injections. In the past Eric has passed out when he saw me have an injection during labour with Amy, I could not see him ever coping with this. I thought I would be fine but when they put the insulin pen in my hand I burst out crying. There was no way I could ever inject my son, or so I thought.

Much to my surprise Eric took the pen and gave Daniel his injection. I asked Eric how he managed to do it as I simply couldn’t and he said that he knew that if he didn’t, Daniel would not be able to come home. The nurses kept reassuring me that things would get better and giving the injections would become easier. Although I believed them and knew it was true I couldn’t see how. Eric became highly competent in caring for Daniel and so he was allowed home. I struggled. I couldn’t do the injections. I couldn’t prick his finger to test his blood. I was a mess. Shock, confusion and tiredness took over.

7.11.15

An interview with Daniel about diabetes.

Today we are taking a look at a child's perspective of diabetes in an interview with my 9 year old son, Daniel, who has had diabetes for nearly 3 years.



When did you first know that something was wrong?
It was at my sister Amy's party. I was eating loads of sweets which was making me drink loads of water. I had six full cups of water and was still thirsty so became a bit suspicious at that time. My parents were probably suspicious as well.

What happened next?
We didn't think much about it but my parents thought it best to go to doctor and see why I was drinking so much water.  So we went to the doctor and they didn't give me a diagnosis or anything but sent me to the hospital.  At the hospital they gave me loads of blood test which were really painful. The used these really mean rectangle finger prickers and they discovered that my blood sugars were very high. They gave me the diagnosis and I found out I had diabetes.  

So what happened after you were diagnosed with diabetes?
I had to stay in hospital a little longer until we got the hang of things and they explained it. So I was in bed most of the day and I made a friend who was also diagnosed with diabetes. It was actually my teacher's daughters son I later found out. I used to go over to his bed and we used to play Lego Starwars. The hospital was really annoying because I had to have blood tests every few hours. I remember having nice big meals and I had to eat all of the desert too as it was counted in my meter. YUM!

How did your life change when you came home from hospital?
Well firstly I had to do loads of blood tests and I had to have injections which I slowly got used to. At school I had to do the same thing. I had to eat biscuits before play times and running around. From then until now I have been trying to get my blood sugars at the right level. It has been really hard working with diabetes. 

What do you hate most about it?
The blood tests and injections because they are really annoying and painful most of the time. Sometimes even now. 

What would you say to another child who has just been diagnosed with diabetes?
I would say that you will get used to it. Even though the dextrose might seem nice, don't eat them when you are not supposed to. Be very accurate with your carb counting so you don't have to go through lots of trouble. 

What would you say to a parent whose child has just been diagnosed with diabetes?
Make sure you are good with the carb counting and you should probably download the blood sugars to figure out patterns so you can keep it level. 

Do you believe that God can heal you?
Yes definitely. 

Why do you think He allowed you to have diabetes?
Maybe He will use it for something good to help other people and to show stuff to the world.  The spread the word when He heals me that God is real and God can heal.

Why do you think He hasn't healed you yet?
I believe it's all part of His plan. He has something special install for the future.

Do you believe God makes people sick?
No! I believe he makes good out of sickness but doesn't make people sick.

What are your plans for the time between now and when you are healed?
Getting my blood sugars stable and praying to be healed. Asking God what He is going to do for me.

Do you feel sad about being sick?
Yes but if God is going to make something good about it then I am fine to stay with it a bit more. 

What would you advise to help people?
Keep your blood sugars stable because this has happened to me, if your blood sugars go too high too often, you get very bad stomach pains and it stings a lot. 

If you are a child or parent with a child suffering with diabetes please feel free to ask Daniel or I questions below or read other posts about our journey.

Love

1.11.15

Daniel and Diabetes

Daniel and Amy

I have four amazing children, two of whom still live at home and two who have grown up and moved out.  It was nearly three years ago when our eldest, Lorah-Kelly got married to her high school sweetheart, Samuel. It was also around this time that we noticed that something was wrong with our son, Daniel who was 7 years old. He seemed fit and well and nothing seemed out of the ordinary except that he was drinking unusual amounts of water. It got so bad that he had to get up during the night several times to have a drink and of course go to the toilet. So after about a week of this I decided it best to go see a doctor even though it seemed like a silly symptom to go to the doctor for.

Everything from the doctors appointment is a bit of a surreal haze and even two years and nine months on, I can remember the shock as if it were yesterday. The doctor did a urine test and afterwards looked gravely concerned and called the hospital.  Daniel was sent over as soon as possible and we were told to be prepared for him to stay overnight. He didn't say what was wrong. Upon arriving at the hospital Daniel was seen immediately and had blood tests. I don't recall exactly what happened or the order of events, all I remember is that his blood sugar was 33  (normal is between 4 - 7). They said they were surprised that he looked as well as he did and was not in a coma. He was that ill!

Daniel was admitted to hospital and we spend the next week at his bedside learning about type 1 diabetes, watching him crying as he had his finger pricked and blood taken often during the day and night. It was heart wrenching. Eric and I were in shock. After a week of excellent education by the NHS diabetic team, we were expected to start caring for him. They assured us that he would not be allowed home until they felt confident that we were able to manage his blood tests and insulin injections. We had to learn how to count carbohydrates, check his blood sugar levels and give him 4 to 6 injections a day. The severity of the situation was heavily impressed upon us and we were reminded that if his blood sugars went too high or too low he could die. It seemed every 5 minutes we were reminded that it was a life threatening life long disease that could not be cured ever.

Eric and I were exhausted from being in hospital, little sleep coupled with a lot of worry and uncertainty. We reached a point where we just wanted our family back home all together so we could get some sense of normality back into our life. Although it was clear life would never be the same again we craved some sort of routine. Each day we were asked if we were ready to give Daniel his injections. In the past Eric has passed out when he saw me have an injection during labour with Amy, I could not see him ever coping with this. I thought I would be fine but when they put the insulin pen in my hand I burst out crying. There was no way I could ever inject my son, or so I thought.

Much to my surprise Eric took the pen and gave Daniel his injection. I asked Eric how he managed to do it as I simply couldn't and he said that he knew that if he didn't, Daniel would not be able to come home. The nurses kept reassuring me that things would get better and giving the injections would become easier. Although I believed them and knew it was true I couldn't see how. Eric became highly competent in caring for Daniel and so he was allowed home. I struggled. I couldn't do the injections. I couldn't prick his finger to test his blood. I was a mess. Shock, confusion and tiredness took over.

I will continue our story and our journey in future posts.  The past few years have been incredibly difficult and today I make the decision to share our story, what we have learned and how we are coping. Daniel will even write his version of the story too and hopefully I can get Eric to also. I know there are others out there struggling with the same thing and I hope that somehow sharing our story will be helpful and comforting for them. For those of you who do not have this particular struggle, you may find it useful for when you meet someone with diabetes or someone with a diabetic child. I had no idea how ignorant I was about diabetes until we were hit with it.  I would also like to look at faith, healing and medicine so there is a lot more to come.

Please chat to me if you have diabetes, are supporting someone with diabetes or just have questions in general about illness and/or healing. Let's stick together as this is a terrible illness but we believe in a God who heals.

Love