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11.9.16

Raging Storms

Storms raged all around me, not in the natural of course but the storms of life. The next season is a bit blurry as it was almost too painful to bear. First it was my second eldest daughter who left home. For the sake of her privacy and to protect all involved I can't tell you too much about it but let's just say that family life got really nasty for us all and it resulted in Jordan leaving home at only seventeen years old. Oh how I wish I could tell you the details so you could understand how much my heart was ripped out, how my marriage was hanging together by a thread and how losing Jordan not only hurt but confirmed my complete failure as a parent to her. Just believe me that it was nasty, unnecessary and very painful and left me broken in a way that I have never experienced before. I was even faced with a choice on one occasion where I was made to choose between my daughter and my husband! What would you do in that situation - it was not nice and I refused to choose either.

It may have been weeks, possibly months but certainly not very long after Jordan left that the next storm hit and if losing a daughter wasn't enough I had to face almost losing a son. We noticed that something was wrong with our son, Daniel who was 7 years old. He seemed fit and well and nothing seemed out of the ordinary except that he was drinking unusual amounts of water. It got so bad that he had to get up during the night several times to have a drink and of course go to the toilet. So after about a week of this I decided it best to go see a doctor even though it seemed like a silly symptom to go to the doctor for.

Everything from the doctor's appointment is a bit of a surreal haze and even two years and nine months on, I can remember the shock as if it were yesterday. The doctor did a urine test and afterwards looked gravely concerned and called the hospital.  Daniel was sent over as soon as possible and we were told to be prepared for him to stay overnight. He didn’t say what was wrong. Upon arriving at the hospital Daniel was seen immediately and had blood tests. I don’t recall exactly what happened or the order of events, all I remember is that his blood sugar was 33  (normal is between 4 – 7). They said they were surprised that he looked as well as he did and was not in a coma. He was that ill!

Daniel was admitted to hospital and we spend the next week at his bedside learning about type 1 diabetes, watching him crying as he had his finger pricked and blood taken often during the day and night. It was heart wrenching. Eric and I were in shock. After a week of excellent education by the NHS diabetic team, we were expected to start caring for him. They assured us that he would not be allowed home until they felt confident that we were able to manage his blood tests and insulin injections. We had to learn how to count carbohydrates, check his blood sugar levels and give him 4 to 6 injections a day. The severity of the situation was heavily impressed upon us and we were reminded that if his blood sugars went too high or too low he could die. It seemed every 5 minutes we were reminded that it was a life threatening lifelong disease that could not be cured ever.

Eric and I were exhausted from being in hospital, little sleep coupled with a lot of worry and uncertainty. We reached a point where we just wanted our family back home all together so we could get some sense of normality back into our life. Although it was clear life would never be the same again we craved some sort of routine. Each day we were asked if we were ready to give Daniel his injections. In the past Eric has passed out when he saw me have an injection during labour with Amy, I could not see him ever coping with this. I thought I would be fine but when they put the insulin pen in my hand I burst out crying. There was no way I could ever inject my son, or so I thought.

Much to my surprise Eric took the pen and gave Daniel his injection. I asked Eric how he managed to do it as I simply couldn’t and he said that he knew that if he didn’t, Daniel would not be able to come home. The nurses kept reassuring me that things would get better and giving the injections would become easier. Although I believed them and knew it was true I couldn’t see how. Eric became highly competent in caring for Daniel and so he was allowed home. I struggled. I couldn’t do the injections. I couldn’t prick his finger to test his blood. I was a mess. Shock, confusion and tiredness took over.

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